Use the links below to view the slides or the video of the sessions from MPN Horizons 2016:
Day 1
Opening:
Medical session #1: MPN 101
- What is MPN and what are the types (Dr. Besses) video & slides
- The basic biology of MPNs (Ruben Mesa) video & slides
- Women and MPNs (Claire Harrison) video & slides
Joint (CLL and MPN Horizons) Advocacy session #1: Creating and managing a patient organization
- Challenges when starting out: Ireland CLL Support Group – a Case Study (Michael Rynne) video
- An established organization: a case study (Jon Mathias) video & slides
- Vision and Mission, Governance, Board Development, Liability Insurance (Lorna Warwick) video & slides
Day 2
Medical Session #2: Diagnostics and Monitoring
- Diagnosing MPN patients+MPN10 (Ruben Mesa) video & slides
- Understanding your blood work results (Carlos Besses) video & slides
- How to monitor MPN patients (Claire Harrison) video & slides
Joint (CLL and MPN Horizons) Advocacy session #2: Market place
- Fundraising (William Crowley and Werner Zinkand) video
- Working with Pharma – benefits, and pitfalls (Ananda Plate)
- Planning a Patients Meeting (Felice Bombaci and Jana Pelouchova)
- Peer to Peer Support (Jon Mathias and Brian Koffman)
Medical Session #3: Treatment and side effects management
- Current and best available treatments (Claire Harrison) video & slides
- Transplant for MPN (Nicolas Kroeger) video & slides
- The role of the Clinical Nurse Specialist (Yvonne Francis) video & slides
Advocacy Session #3 (independent MPN specific): Best Practice Sharing
- MPN Research Foundation – Involvement in research (William Crowley) video & slides
- MPN Research Foundation – The registry project (Lindsey Whyte) video (at 10:45) slides
- MPN Voice UK – working with Health Technology Appraisals (Jon Mathias) video & slides
- Flute of Light Israel – Awareness drive for blood cancer week (Robert Zelig) video & slides
- MPN Belgium – Personal diary (Ilse Jans) video & slides
- Abrale Brazil – Building awareness for MPN and fight for access in low-resource countries (Fernanda de Carvalho Geiger) video & slides
- MPN Alliance Australia – Setting up an MPN patients organization (Jolanda Visser) video & slides
- MPN Japan – current projects (Kaori Taki) video & slides
MPN Advocates Network – priorities discussion – video
Day 3
Medical Session #4: The future and clinical trials in MPN
- New treatment in the pipeline (Claire Harrison) video & slides
- The stages of a clinical trial (Nicolas Kroeger) video & slides
- New Directions in MPN treatment- Precision medicine, Immunotherapy and CRISPR Gene editing (Ruben Mesa) video & slides