Join us for the 4th MPN Horizons: Learn. Share. Grow Conference

DATE: 25th to 27th October 2019

Dear MPN AN advocate’s,

Our Learn Share & Grow approach that can be achieved through collaboration and is the cornerstone for the advancement of MPN knowledge for our members.  The MPN Horizons conference is dedicated to the development of our members as patient advocates and deals with topics such as Psycho-Social issues, How MPN’s work on a Molecular level, how to be an effective Advocate, Pipeline for treatment and Living with an MPN. Dealing with these types of questions is the essence of Learn. Share & Grow and our conference offers the opportunity to support and facilitate the quality of education. This one of a kind conference also provides opportunities to be able to exchange ideas, interact & share best practice and provide a platform to start networking across borders, build alliances and so much more for you to bring back to your own organization. 

The registration process will start on June 1, 2019, and we will inform you as soon as the registration platform is online. 

Important Notes

Apply for your Schengen visa on time!

Please also remember to apply for your visa on time! To enter Portugal (which is an EU member state) you will need a “Schengen visa”. Detailed information can be found here:  Please check this page carefully!

As in previous years, we will provide a briefing paper in May of 2019 that shall help you when submitting your visa application to the competent authorities in your country. Please make sure you prepare and submit your papers on time (3 months before your trip, i.e. latest by end of July 19).


  • Please note that there is a restriction of 1 advocate per organization who can participate at the conference.
  • 2nd Advocate can register but will need to organize own flights to Lisbon and there will be a conference fee of Euro 500 that will cover accommodation and conference.
  • Registrations will start on June 1, 2019. We will inform you as soon as the registration platform is online.

We very much hope that you will be able to attend the 4th conference of its kind – with an exciting program on MPN advocacy and MPN science and remarkable networking opportunities with MPN advocacy leaders from around the globe!

MPN Horizons 2018 Conference

The 2018 global conference for MPN Patient Advocates was held from August 31st to September 2nd in Prague, the Czech Republic

The event consisted of over 20 talks, covering updates on MPN Research, current and emerging therapies, symptom management and a variety of advocacy and support topics.

Videos and slides from the presentations are available here.

September 13 is MPN Awareness Day!  Support MPN Awareness Day, by wearing something Orange or Red!

September is Blood Cancer Awareness month.  September 13 is specifically dedicated to Myleproliferative Neoplasms, a rare Blood Cancer.  Essential Thrombocythemia, Polycethemia Vera and Myleofibrosis are all MPN Blood Cancers!  Learn More about these rare blood cancers by visiting our website or our facebook pages!

MPN Horizons 2017 Session Videos


MPN Horizons 2017 was a great success!  Please take the opportunity to view the video’s of all the sessions, and the power point slides that accompany each session.

MPN Horizons 2017 – session slides and videos


Please look back to our website for information on MPN Horizons 2018.  Information will be posted about next years conference in May 2018!  We look forward to seeing you then!