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July 2019

Empowered #patientchat

July 12 @ 12:00 - 12:30 UTC+1
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Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. For more information, visit https://powerfulpatients.org/event/empowered-patientchat-july-12th/

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AAMDSIF Patient & Family Conference

July 20 @ 07:45 - 13:00 UTC+1
UWM School of Continuing Education, 161 W Wisconsin Ave #6000
Milwaukee, WI 53203 United States

Patients with Acute Myeloid Leukemia (AML), Aplastic Anemia (AA), Chronic Lymphocytic Leukemia (CLL), Chronic Myelomonocytic Leukemia (CMML), Graft vs Host Disease (GVHD), Myelodysplastic Syndrome (MDS), Myeloproliferative Neoplasms (MPNs), Pediatric blood cancers and or bone marrow failure diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Pure Red Cell Aplasia (PRCA) and other related diseases are invited to join. Special Programming for patients and caregivers of pediatric cancers.

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LIVE Webinar: Self-Advocacy and Care Coordination

July 24 @ 14:00 - 15:00 UTC+1

Do you want to learn how to better advocate for yourself in a healthcare setting? Are you curious about how care coordination fits into a successful treatment plan? We will cover these topics and more in a free webinar on July 24 at 2:00 pm EDT. Join us as Laran Hyder, Director of Education and Outreach at the Neuroendocrine Tumor Research Foundation (NETRF), explains self-advocacy and how you can develop skills to become a more effective self-advocate. Then, NORD’s own…

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CRI Immunotherapy Patient Summit

July 27 @ 10:00 - 15:00 UTC+1
Dana-Farber Cancer Institude, 450 Brookline Ave
Boston, MA 02215 United States
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Learn about the basics of cancer immunotherapy, a highly promising new approach to cancer treatment. Medical experts along with patients who have been treated with immunotherapy will discuss how research and patient participation in clinical trials is helping us get closer to cures for all types of cancer. Space is limited, so register today! Click here for more information

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August 2019

Voices of MPN Patient Education Meeting

August 6 @ 19:00 - 21:00 UTC+1
Anaheim, CA

Join us for a live, in-person learning event in your area that is specifically designed to help patients take a closer look at the different types of myeloproliferative neoplasms (MPNs), a group of rare blood cancers. It is your chance to ask questions, meet with others who share your condition and get support. Speaker: Robin Green, MSN, OCN, CMSRN, FNP-BC RSVP: www.mpnpatientevent.com

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Voices of MPN Patient Education Meeting

August 8 @ 19:00 - 21:00 UTC+1
Courtyard by Marriott San Jose Campbell, 655 Creekside Way
Campbell, CA 95008 United States
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Join us for a live, in-person learning event in your area that is specifically designed to help patients take a closer look at the different types of myeloproliferative neoplasms (MPNs), a group of rare blood cancers. It is your chance to ask questions, meet with others who share your condition and get support. Speaker: Dennis Chang, MN, MS, RN, OCN RSVP: www.mpnpatientevent.com

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