Virtual Event
Date: 12 – 14 November 2021
The MPN Horizons conference is dedicated to the development of our members as patient advocates. In light of the ever evolving and unpredictability of COVID-19 and the various variants that are now posing a health risk globally, the Steering Committee has decided to move to a fully virtual event for 2021.
Please register for the 6th MPN Horizons: “Learn. Share. Grow” Conference by clicking here
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MPN Horizons 2021
12-14 November 2021
Starting at 12:45 Central European Time (CET)
DRAFT AGENDA
DAY 1: Friday 12th November 2021
12:00-13:00
“MPN 101- What are MPNs?” – Prof. Martin Ellis
13:00-13:30
Opening:
- Welcome by Werner Zinkand, Chair of MPN AN and Giora Sharf
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MPN AN Update – Jon Mathias and Felice Bombaci
13:30 – 15:00
Medical Session #1: The future of MPNs
Chairs: Jon Mathias and Mirjana Babamova
- Besremi: The New Interferon
Speaker: Prof. Dr Heinz Gisslinger (15 min)
- Future of MPN New Drugs
Speaker: Prof. Ruben Mesa (25 min)
- Update to current clinical trials
Speaker: Prof. Claire Harrison (25 min)
Q&A 25 min
15:00 15:30
Break
15:30 – 17:00
Medical and Advocacy Session #1: COVID-19 and MPN – What have we learned?
Chairs: Param Puthem and Giora Sharf
- The Main Finding Of Connection Between COVID-19 and MPNs, including Vaccines
Speaker: Prof Tiziano Barbui (20 min + 10 min Q&A) - How Patient Groups Engage With Their Communities in Covid Times – Best practices
- Role of Data and Technology in Patient Engagement- Digital tools for the New Reality – Jonathan Mathias (10 min)
- How To Use New media to Increase Your Engagement With The Patient Community During Covid? – Andrew Schorr (10min)
- Managing our blood disorder during the times of COVID-19 – Aashray Paul (10 min)
- Facing the pandemic with technology – Felipe Tapia (10 min)
Q&A 20 min
17:00
Networking lounge is OPEN
17:30
End of day 1
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DAY 2: Saturday 13th November 2021
14:00 – 15:30
Medical Session #2: Today and Tomorrow in MPN Therapy
Chairs: Kapila Viges and Werner Zinkand
- Status of Genetic Testing and Other Biomarkers
Speaker: Prof Gregor Hoermann (20 min) - Key Criteria for Disease Progression Beyond Fibrotic and Leukemic Transformation in Each of the MPNs? How can we prevent?
Speaker: Andrew Kuykendall (20 min) - The role of Transplant in MPNs- Doctors and patients’ Perspective
Speakers: Prof Nicolaus Kroeger (20 min) and Joachim Urmelt (10 min)
Q&A 20 min
15:30 16:00
Break
16:00 – 17:30
Advocacy Session #2: Living well with MPN
Chairs: Lyat Granati Spinoza and Ken Young
- Nutrition
Speaker: Prof. Angela Fleischmann and Natalie Cook (20 min) - Evidence Based Approach to Use Complementary Strategies
Speaker: Prof. Krisstina Gowin (20 min) - Living with MPN Fatigue
Speaker: Dr Elizabeth Pearson (20 min)
Q&A 30 min
17:30 – 18:00
Regional meetings summary – Feedback
- North America – Kapila Viges
- South America – Lyat Granati Espinosa
- Australia and Asia – Param Puthem and Ken Young
- Western Europe – Werner Zinkand, Felice Bombaci and Jon Mathias
- Eastern Europe – Mirjana Babamova
18:00
Networking lounge is OPEN
18:30
End of day 2
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DAY 3: Sunday 14th November 2021
14:00 – 15:30
Medical Session #3: Special cases in MPNs
Chairs: Kapila Viges and Mirjana Babamova
- MPN in Young Patients – Under 40 years old
Speaker: Prof. Eva Lengfelder (20min) - Pregnancy in MPN
Speaker: Prof. Martin Griesshammer (20min) - Comorbidities in MPNs
Speaker: Prof. Claire Harrison (20min)
Q&A 30 min
15:30 16:00
Break
16:00 – 17:30
Advocacy Session #3: MPN Next Steps and Future
Chairs: Felice Bombaci and Jon Mathias
- “The Voice of Younger MPN patients”
Speakers: Alice Watson, Lennart Rusch, and Caroline Thomas (30 min) - History, Work, and Future of MPN RF
Speaker : Kapila Vignes (15 min) - Involvement of Patient Advocate Groups in HTA
Speaker: Werner Zinkand (15min)
Q&A 30 min
17:30 – 18:00
Concluding remarks by Werner Zinkand and Mirjana Babamova