MPN Horizons 2021 – Registration is NOW OPEN!

Virtual Event

Date: 12 – 14 November 2021

The MPN Horizons conference is dedicated to the development of our members as patient advocates. In light of the ever evolving and unpredictability of COVID-19 and the various variants that are now posing a health risk globally, the Steering Committee has decided to move to a fully virtual event for 2021.

Please register for the 6th MPN Horizons: Learn. Share. Grow” Conference by clicking here


MPN Horizons 2021

12-14 November 2021

Starting at 12:45 Central European Time (CET)



DAY 1: Friday 12th November 2021


“MPN 101- What are MPNs?”Prof. Martin Ellis



  • Welcome by Werner Zinkand, Chair of MPN AN and Giora Sharf
  • MPN AN Update Jon Mathias and Felice Bombaci

13:30 – 15:00
Medical Session #1: The future of MPNs
Chairs: Jon Mathias and Mirjana Babamova

  • Besremi: The New Interferon
    Speaker: Prof. Dr Heinz Gisslinger (15 min)
  • Future of MPN New Drugs
    Speaker: Prof. Ruben Mesa (25 min)
  • Update to current clinical trials
    Speaker: Prof. Claire Harrison (25 min)

Q&A 25 min

15:00 15:30

15:30 – 17:00
Medical and Advocacy Session #1: COVID-19 and MPN – What have we learned?
Chairs: Param Puthem and Giora Sharf

  • The Main Finding Of Connection Between COVID-19 and MPNs, including Vaccines
    Speaker: Prof Tiziano Barbui (20 min + 10 min Q&A)
  • How Patient Groups Engage With Their Communities in Covid Times – Best practices
    • Role of Data and Technology in Patient Engagement- Digital tools for the New Reality – Jonathan Mathias (10 min)
    • How To Use New media to Increase Your Engagement With The Patient Community During Covid? – Andrew Schorr (10min)
    • Managing our blood disorder during the times of COVID-19 – Aashray Paul (10 min)
    • Facing the pandemic with technology –  Felipe Tapia (10 min)

Q&A 20 min

Networking lounge is OPEN

End of day 1



DAY 2: Saturday 13th November 2021

14:00 – 15:30
Medical Session #2: Today and Tomorrow in MPN Therapy
Chairs: Kapila Viges and Werner Zinkand

  • Status of Genetic Testing and Other Biomarkers
    Speaker: Prof Gregor Hoermann (20 min)
  • Key Criteria for Disease Progression Beyond Fibrotic and Leukemic Transformation in Each of the MPNs? How can we prevent?
    Speaker: Andrew Kuykendall (20 min)
  • The role of Transplant in MPNs- Doctors and patients’ Perspective
    Speakers: Prof Nicolaus Kroeger (20 min) and Joachim Urmelt (10 min)

Q&A 20 min

15:30 16:00

16:00 – 17:30
Advocacy Session #2: Living well with MPN
Chairs: Lyat Granati Spinoza and Ken Young

  • Nutrition
    Speaker: Prof. Angela Fleischmann and Natalie Cook  (20 min)
  • Evidence Based Approach to Use Complementary Strategies
    Speaker: Prof. Krisstina Gowin (20 min)
  • Living with MPN Fatigue
    Speaker: Dr Elizabeth Pearson (20 min)

Q&A 30 min

17:30 – 18:00

Regional meetings summary – Feedback

  • North America – Kapila Viges
  • South America – Lyat Granati Espinosa
  • Australia and Asia – Param Puthem and Ken Young
  • Western Europe – Werner Zinkand, Felice Bombaci and Jon Mathias
  • Eastern Europe – Mirjana Babamova

Networking lounge is OPEN

End of day 2

DAY 3: Sunday 14th November 2021

14:00 – 15:30
Medical Session #3: Special cases in MPNs

Chairs: Kapila Viges and Mirjana Babamova

  • MPN in Young Patients – Under 40 years old
    Speaker: Prof. Eva Lengfelder (20min)
  • Pregnancy in MPN
    Speaker: Prof. Martin Griesshammer (20min)
  • Comorbidities in MPNs
    Speaker: Prof. Claire Harrison (20min)

Q&A 30 min

15:30 16:00

16:00 – 17:30
Advocacy Session #3: MPN Next Steps and Future

Chairs: Felice Bombaci and Jon Mathias

  • “The Voice of Younger MPN patients”
    Speakers: Alice Watson, Lennart Rusch, and Caroline Thomas (30 min)
  • History, Work, and Future of MPN RF
    Speaker : Kapila Vignes (15 min)
  • Involvement of Patient Advocate Groups in HTA
    Speaker:  Werner Zinkand (15min)

Q&A 30 min

17:30 – 18:00
Concluding remarks by Werner Zinkand and Mirjana Babamova