MPN Horizons 2024 Conference

MPN Advocates Network (MPN AN) held its 9th MPN Horizons Conference from 6th to 8th September 2024 in Warsaw, Poland. The conference brought together 70 participants from 26 different countries, creating a platform for MPN advocates, healthcare professionals, and patients to share knowledge and strategies to improve outcomes for people living with myeloproliferative neoplasms (MPNs). Over three days, experts presented the latest updates on treatment, patient advocacy, research, and clinical practices.

The ongoing feedback from our members highlighted the event’s tremendous success. Participants from around the world experienced the unique sense of community that the MPN Advocates Network has cultivated. You can view all the photos HERE!

MPN Horizons is a wholly community-run and multi-sponsored conference. The annual conference is run by the MPN Advocates Network, hosted by the non-profit, Swiss-based, and patient-driven “Leukemia Patient Advocates Foundation”.

Presentations & Videos are now available!

Please take note that the speakers have authorized MPN Advocates Network to disburse the presentations in PDF format only on this site, however, it isn’t permitted to transfer the PDF files elsewhere! If you would like to share the slides, kindly do this by connecting to this page or the documents on this site!

To view all the presentations just Click on “PDF”. Should you wish to translate the selected presentation, please contact us by email at the following doneva@mpn-advocates.net and request the PowerPoint file. This will make it easier for you to translate the presentation into the language of your choice.

To view individual sessions, click on “Video” below or watch the following.

MPN Horizons 2024 Conference:
Shifting the treatment paradigms of MPNs

Friday 6th October

Welcome
Werner Zinkand & Giora Sharf – Video, PDF

Minute of silence 

MPN AN Update
Werner Zinkand 

Regional Meetings – Breakout groups and reports – Video

• Australia, Asia & Africa
• Eastern & Western-Europe
• North- & South-America

Medical Session 1: MPN State of the Art – the best treatment available now
Current Diagnosis, Clinical Treatment and Management of MPNs,
new guidelines
Chairs: Werner Zinkand & Jon Mathias

• State of the Art in MF
  Claire Harrison – Video, PDF
• State of the Art in ET
  Susanne Isfort – Video, PDF
• State of the Art in PV
  Jean-Jacques Kiladijan (Virtual) – Video

Saturday 7th October

Advocacy Session 2: Opportunities and realities in access “The Elephant in the Room”
Chairs: Ken Young & Lyat Granati Espinosa

• How are drugs approved and become available?
  Monica Racovita (Virtual) – Video, PDF
• Reality in different regions of the world
  Marko Lucijanic: Croatia and Eastern Europe – Video, PDF
  Alok Shetty: India (Virtual) – Video
• The Max Foundation – Case study of success
  Viji Venkatesh – Video, PDF

Medical Session 2: What is in the pipeline? Emerging Therapies and Treatment Strategies
Chairs: Kapila Viges & Viji Venkatesh

• Pipeline for PV
  Susanne Isfort  –Video, PDF
• Pipeline for ET & MF
  Claire Harrison – Video, PDF Part 1, PDF Part 2
• Predicting factors for relapse and progression
  Belinda Guo (Virtual) – Video, PDF

Advocacy Session 3: The patient’s journey – You are not alone!
Chairs: Felice Bombaci & Drazen Vincek

• Storytelling in Advocacy – why is it important?
  Werner Zinkand – Video, PDF
• Creating and running a patient community, in real life and online
  Liat Rotem Melamed (Virtual) – Video, PDF
• How to empower the young patient community?
  Alice Watson (Virtual) – Video, PDF

Medical Session 3: The fight for cure
Chairs: Giora Sharf & Jon Mathias

• Setting the scene: What is reasonable to dream about?
  Ronald Hoffman (Virtual) – Video
• Oxford Style Debate: Would you transplant a healthy MPN patient?
  Yes Susanne Isfort – Video, PDF
  No Claire Harrison – Video, PDF
• What do doctors dream about?
  Is TFR (Treatment Free Remission) possible in future for MPN patients?
  Panel discussion: Claire Harrison, Marko Lucijanic, Ronald Hoffman (Virtual) & Susanne Isfort – Video

Sunday 8th October

Advocacy Session 4: Best Practices 
Chairs: Lyat Granati Espinosa & Viji Venkatesh

• Tools of organisations to grant access to treatment
  Felipe Tapia – Maxi Vida, Chile – Video, PDF
• The survey to understand the “Out-of-pocket cost”
  Felice Bombaci – Gruppi AIL Pazienti Neoplasie Ematologiche, Italy – Video, PDF
• Using technology and research – the MPN Voice App
  Jon Mathias – MPN Voice, UK – Video, PDF
• AIPAMM Academy: Peer Counseling for Empowered Patients
  Valentina Biagioli – AIPAMM, Italy – Video, PDF
• Patient involvement in research, information & support
  Tuomo Leppänen – Association of Cancer Patients in Finland – Video, PDF
• MPN Quality of Life Marathon
  Elena Greschner – MPN Austria – Video, PDF

Medical Session 4: Updates on MPN research and treatment
Artificial intelligence in research, treatment and advocacy
Chairs: Ken Young & Kapila Viges

• Use of Patient-Reported data in MPN Research
  Patrick Harrington (Virtual) – Video, PDF
• New horizon technologies for diagnosis
  David Ross (Virtual) – Video, PDF
• Future treatments in MF
  Marko Lucijanic – Video, PDF

Best poster award & Closing Remarks
Werner Zinkand & Giora Sharf – Video

MPN Steering Committee

The Conference Programme was governed by the MPN steering committee consisting of MPN patient advocates from North America, Latin America, Asia and Pacific, Western Europe, and Eastern Europe. A big thank you to all of you for your fantastic work to contribute to the very successful MPN Horizons once again!

• Werner Zinkand – Chairperson, MPN-Netzwerk Germany
• Ken Young – Vice Chair, MPN Alliance, Australia
• Felice Bombaci – Treasurer, Gruppo AIL Pazienti LMC, Italy
• Giora Sharf – LePaf Representative and Israeli Flute of Light Patients Organization, Israel
• Jon Mathias – MPN Voice, UK
• Kapila Viges – MPN Research Foundation, USA
• Lyat Granati Espinosa – Max Foundation, Chile
• Nathalie Cook – MPN Alliance, Australia
• Viji Venkatesh – Friends of Max, India

MPN Management Team

Marija Stefkova, email: doneva@mpn-advocates.net

Sponsorship Acknowledgement

We would like to thank our sponsors for providing unconditional educational funding. Without their support, this conference would not be possible:

• Novartis
• Bristol-Myers Squibb
• GSK
• AOP Health
• Morphosys
• SOBI
• Leukemia & Lymphoma Society
• Incyte
• Protagonist Therapeutics
• Kartos Therapeutics
• Silence Therapeutics
• Pharma&

Until the next MPN Horizons!

Photos of MPN Horizons 2024