MPN Horizons 2025 ConferenceMPN Horizons 2025 Conference
The MPN Advocates Network (MPN AN) successfully hosted its 10th MPN Horizons Conference from 10–12 October in the vibrant city of Marrakesh, Morocco. The event gathered over 70 participants representing nearly 30 countries, offering a dynamic platform for MPN advocates, healthcare professionals, and patients to exchange knowledge, share experiences, and explore strategies to improve the lives of people affected by myeloproliferative neoplasms (MPNs). Throughout the three-day program, leading experts delivered insightful presentations covering the latest advances in treatment, research, clinical practice, and patient advocacy.
MPN Horizons is a wholly community-run and multi-sponsored conference. The annual conference is run by the MPN Advocates Network, hosted by the non-profit, Swiss-based, and patient-driven “Leukemia Patient Advocates Foundation”.
Presentations & Videos are now available!
We’re pleased to share that all conference presentations and videos are now accessible on this site. Please note that speakers have granted permission for their presentations to be shared in PDF format only through this platform. Redistribution or sharing of the PDF files elsewhere is not allowed.
If you wish to share a presentation, please do so by linking directly to this page or to the documents available here.
To access the presentations, simply click on “PDF”.
If you would like to translate a presentation, please email us at doneva@mpn-advocates.net to request the PowerPoint file, which will make translation into your preferred language easier.
To view specific sessions, click on “Video” below or watch them directly on this page.
MPN Horizons 2025 Conference:
Beyond Boundaries
Friday 10th October
Opening & Welcome, MPN AN Update
Bahija Gouimi & Werner Zinkand – Video, PDF
Advocacy Session 1: Regional Meetings – Breakout groups and reports
- Australia, Asia & Africa
- Eastern & Western-Europe – Video
- North- & South-America
Advocacy Session 2: Life before & after diagnosis
Chairs: Annemiek Weel ev Eppingbroek & Lyat Granati Espinosa
- The personal impact of living with MPN neoplasms
Nona Baker, UK – Video, PDF - The role of the caregivers, practical advices and tools
Monica Perez, Spain – Video, PDF - Cultural challenges in patients in LMICs Eastern philosophy of acceptance
Viji Venkatesh, India – Video, PDF
Panel Discussion 30 min: Nona Baker, Monica Perez, Viji Venkatesh, Annemiek Weel ev Eppingbroek & Lyat Granati Espinosa – Video
Saturday 11th October
Medical Session 1: Diagnostic and Fundamentals of MPNs
Chairs: Nathalie Cook & Yih Seong Wong
- Diagnostic criteria for ET, PV and MF
Susanne Isfort, Germany – Video, PDF - Reading lab work and results, is bone marrow biopsy necessary? The reality in practice
Adrian Duek, Israel – Video, PDF - Interferon treatment in MPN. Inflammation in MPNs and management of side effects.
Joshua Casan, Australia (Virtual) – Video, PDF
Q&A – Video
Medical Session 2: MPNs Today and Tomorrow
Chairs: Kapila Viges & Werner Zinkand
- State of the art in PV and what is in the pipeline?
Adrian Duek, Israel – Video, PDF - State of the art in ET and what is in the pipeline?
Susanne Isfort, Germany – Video, PDF - State of the art in MF and what is in the pipeline? New and combination therapies.
Haifa Kathrin Al-Ali, Germany – Video, PDF
Q&A – Video
Advocacy Session 3 – Workshops: How to run a patient group?
- Workshop 1: Building a community, development of campaigns and activities in favour of fundraising Viji Venkatesh, India, Milica Kuzmanovska, Macedonia & Maz Campbell-Drew, UK – Video, PDF
- Workshop 2: How to engage new patients in the organization? Collaboration between patient groups and haematology services.
Lyat Granati Espinosa, Chile & Felipe Tapia, Chile – Video, PDF
Medical session 3: Research, studies and endpoints
Chairs: Felice Bombaci & Jon Mathias
- Importance of patient advocates engagement in new drug development
Giora Sharf, Israel – Video, PDF - What are endpoints, old and new? Why are they relevant?
Marko Lucijanic, Croatia – Video, PDF - Health economics. Regulatory perspective on drug approval by FDA and EMA.
Carole Longson, UK (Virtual) – Video
Panel discussion 45min : Giora Sharf, Haifa Kathrin Al-Ali & Susanne Isfort + pharma representative – Video
Sunday 13th October
Advocacy Session 4: Best Practices
Chairs: Viji Venkatesh & Sara Douglas
- Reorganisation and outsourcing of administrative tasks
Rainer Borchers, Ulrike v. Mickwitz, mpn-netzwerk e.V., Germany – Video, PDF - Patient Intervention Programs in India
Anil Nagpal, Friends of Max, India – Video, PDF - Compass: Finding Our Way Establishing Malaysia’s First MPN Support And Advocacy Network Yih Seong Wong, Sejati Initiative, Malaysia – Video, PDF
- United For Myelofibrosis
Daniela Dordoni, AIPAMM, Italy – Video, PDF - Nordic Meeting on Car-T And Innovative Treatments with a Special Focus On MPN
Lisee-lott Eriksson, Blodcancerforum, Sweden – Video, PDF
Medical Session 4: How to define and manage Quality of Life?
Chairs: Nona Baker & Jon Mathias
- The impact of long-term complications of disease and treatment on Quality of Life
Haifa Kathrin Al-Ali, Germany – Video, PDF - How to create an integrated team of patients, advocates and healthcare professionals?
Sara Douglas, USA – Video, PDF - Empower yourself through symptom and health tracking
Patrick Harrington, UK (Virtual) – Video, PDF
Q&A – Video
Best poster award & Closing Remarks
Kapila Viges & Giora Sharf – Video
The MPN AN Steering Committee
The Conference Programme was governed by the MPN steering committee consisting of MPN patient advocates from North America, Latin America, Asia and Pacific, Western Europe, and Eastern Europe. With Project Management led by Giora Sharf & Marija Stefkova. A big thank you to all of you for your fantastic work to contribute to the very successful MPN Horizons once again!
- Werner Zinkand – Chairperson, MPN-Netzwerk Germany
- Ken Young – Vice Chair, MPN Alliance, Australia
- Felice Bombaci – Treasurer, Gruppo AIL Pazienti LMC, Italy
- Giora Sharf – LePaf Representative and Israeli Flute of Light Patients Organization, Israel
- Jon Mathias – MPN Voice, UK
- Kapila Viges – MPN Research Foundation, USA
- Lyat Granati Espinosa – Max Foundation, Chile
- Nathalie Cook – MPN Alliance, Australia
- Viji Venkatesh – Friends of Max, India
MPN AN Management Team
Marija Stefkova, email: doneva@mpn-advocates.net
Sponsorship Acknowledgement
We would like to thank our sponsors for providing unconditional educational funding. Without their support, this conference would not be possible:
- Novartis
- GSK
- PharmaEssentia
- Takeda
- MSD
- SOBI
- AOP Health
- Geron
- Bristol-Myers Squibb
- Incyte
- Pharma&
- Leukemia & Lymphoma Society
- Kartos Therapeutics
- Silence Therapeutics
Until the next MPN Horizons!