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Constitution and Legal Status

The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain, and the UK.

The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.

The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.

The constitution is available on request. Please email info@mpn-advocates.net.

The Steering Committee consists of MPN Patient Advocates from across the world.

 

Steering Committee

 

Chairperson	Treasurer
Michelle Woehrle MPNRF, USA	Werner Zinkand MPN-Netzwerk Germany

 

Committee Members

 

Felice Bombaci Gruppo AIL Pazienti LMC, Italy	Mirjana Babamova HEMA, Macedonia

 

Jon Mathias MPN Voice, UK	Cheryl Petruk MPN Canadian MPN Patients Network, Canada

 

Param Puthen Friends of Max, India	Giora Sharf LePaf Representative and Israeli Flute of Light Patients Organization, Israel

 

Lyat Granati Spinoza Max Foundation, Chile	Ken Young MPN Alliance, Australia

 

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We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group

“Together we have a stronger voice!“

The current members of the organization are listed below.

Do you want to become a member? Please email info@mpn-advocates.net

Please fill out the Membership application form and email it to info@mpn-advocates.net. Your application will be reviewed by our membership committee and you will be contacted when it’s approved.

 

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Click Here for MPN Advocates Network Membership Registration Form

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MPN member organizations

WESTERN EUROPE

1. Austria – MPN Austria
2. Belgium – MPN Belgium
3. Denmark – Danish MPN Patient Organization
4. Finland – Association on Cancer Patients in Finland
5. France – ALTE SMP
6. Germany – MPN Netzwerk E.V.
7. Italy – AIPAMM
8. Israel – Flute of Light
9. The Netherlands – MPN Stichting Netherlands
10. Norway – The Norwegian Bloodcancer Association-Blodkreftforeningen
11. Spain – AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia
12. Sweden – Swedish Blood Cancer Organization
13. Switzerland – MPN Patient Support Association Switzerland
14. United Kingdom – MPN Voice UK
15. United Kingdom – Leukemia Care

ASIA AND PACIFIC

1. Australia – MPN Alliance Australia
2. Australia – Rubi Red
3. India – Friends of Max
4. Japan – MPN-JAPAN
5. Korea – KBDCA (Korea Blood Disease & Cancer Association)
6. Thailand – MPN Thailand Advocacy group

NORTH AMERICA

1. Canada – Canadian MPN Network
2. USA – MPN Cancer Connection
3. USA – The Leukemia and Lymphoma Society
4. USA – MPN Research Foundation

LATIN AMERICA

1. Brazil – ABRALE-Brazilian Lymphoma and Leukemia Society
2. Chile – The Max Foundation Chile
3. Chile – Corporación Nacional Maxi-Vida Chile
4. Costa Rica – AGALEMO Amalia & Glenn Dewey Association for Leukemia,Myeloma and Other blood cancer patients

MIDDLE EAST AND AFRICA

1. Morocco A.M.A.L Organization

CENTRAL AND EASTERN EUROPE & WEST ASIA

1. Armenia – MPN Armenia
2. Azerbeijan – Fighting Leukemia
3. Croatia – Croatian Leukemia and Lymphoma Society (HULL)  
4. Czech Republic – Diagnoza leukemie
5. Hungary – MOHA-Fondation for Hungarian Oncohematological Patients
6. Macedonia – HEMA
7. Serbia – LIPA
8. Slovakia – Association of patients with hematological malignancies
9. Slovenia – Slovenian lymphoma and leukemia patient association