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Constitution and Legal Status

The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain, and the UK.

The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.

The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.

The constitution is available on request. Please email info@mpn-advocates.net.

The Steering Committee consists of MPN Patient Advocates from across the world.

 

Steering Committee

 

Chairperson

Treasurer


Michelle Woehrle

MPNRF, USA


Werner Zinkand

MPN-Netzwerk Germany

 

Committee Members

 


Felice Bombaci

Gruppo AIL Pazienti LMC, Italy


Mirjana Babamova

HEMA, Macedonia

 


Jon Mathias

MPN Voice, UK

Cheryl Petruk

MPN Canadian MPN Patients Network, Canada

 


Param Puthen

Friends of MaxIndia

Giora Sharf

LePaf Representative and Israeli Flute of Light
Patients Organization, Israel

 


Lyat Granati Spinoza

Max Foundation, Chile


Ken Young

MPN Alliance, Australia

 



We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group

Together we have a stronger voice!

The current members of the organization are listed below.

Do you want to become a member? Please email info@mpn-advocates.net

Please fill out the Membership application form and email it to info@mpn-advocates.net. Your application will be reviewed by our membership committee and you will be contacted when it’s approved.

 


Click Here for MPN Advocates Network Membership Registration Form


 

MPN member organizations

WESTERN EUROPE

  1. Austria – MPN Austria
  2. Belgium – MPN Belgium
  3. Denmark – Danish MPN Patient Organization
  4. Finland – Association on Cancer Patients in Finland
  5. France – ALTE SMP
  6. Germany – MPN Netzwerk E.V.
  7. Italy – AIPAMM
  8. Israel – Flute of Light
  9. The Netherlands – MPN Stichting Netherlands
  10. Norway – The Norwegian Bloodcancer Association-Blodkreftforeningen
  11. Spain – AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia
  12. Sweden – Swedish Blood Cancer Organization
  13. Switzerland – MPN Patient Support Association Switzerland
  14. United Kingdom – MPN Voice UK
  15. United Kingdom – Leukemia Care

ASIA AND PACIFIC

  1. Australia – MPN Alliance Australia
  2. Australia – Rubi Red
  3. India – Friends of Max
  4. Japan – MPN-JAPAN
  5. Korea – KBDCA (Korea Blood Disease & Cancer Association)
  6. Thailand – MPN Thailand Advocacy group

NORTH AMERICA

  1. Canada – Canadian MPN Network
  2. USA – MPN Cancer Connection
  3. USA – The Leukemia and Lymphoma Society
  4. USA – MPN Research Foundation

LATIN AMERICA

  1. Brazil – ABRALE-Brazilian Lymphoma and Leukemia Society
  2. Chile – The Max Foundation Chile
  3. Chile – Corporación Nacional Maxi-Vida Chile
  4. Costa Rica – AGALEMO Amalia & Glenn Dewey Association for Leukemia,Myeloma and Other blood cancer patients

MIDDLE EAST AND AFRICA

  1. Morocco A.M.A.L Organization

CENTRAL AND EASTERN EUROPE & WEST ASIA

  1. Armenia – MPN Armenia
  2. Azerbeijan – Fighting Leukemia
  3. Croatia – Croatian Leukemia and Lymphoma Society (HULL)  
  4. Czech Republic – Diagnoza leukemie
  5. Hungary – MOHA-Fondation for Hungarian Oncohematological Patients
  6. Macedonia – HEMA
  7. Serbia – LIPA
  8. Slovakia – Association of patients with hematological malignancies
  9. Slovenia – Slovenian lymphoma and leukemia patient association