Goal

MPN Advocates Network was founded by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organisations and providing a platform for joint activity.

The objective of the organisation is to enhance MPN patient care by collaboratively:

  • Acting as an international collective representative of MPN patient groups, interacting with healthcare funding, treatment approval, and treatment research organisations
  • Sharing best practice of support and advocacy activities between all patient groups
  • Sharing available information on all current treatments, technologies and research results
  • Encouraging cooperation between advocates, researchers, clinicians and health care organizations

MPN Advocates Network operates purely for the benefit of MPN patients and acts independently of any other organisation or company. MPN Advocates Network aims to be supported by a broad base of sponsorship and funding.