The 2019 global conference for MPN Patient Advocates was held from October 25th to October 27th in Lisbon, Portugal.
Delegates attended from Armenia, Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Chile, Croatia, Czech Republic, Denmark, Finland, France, Germany, Hungary, India, Ireland, Israel, Italy, Japan, Korea, Macedonia, Morocco, the Netherlands, Norway, the Philippines, Serbia, Slovakia, Slovenia, Sweden, Switzerland, Thailand, the UK, and the USA.
The event consisted of over 20 talks, covering updates on MPN Research, the Psycho-Social Impact of an MPN Diagnosis on patients and caregivers, How to be an Effective MPN Advocate, Pipeline of treatment options for MPNs and a variety of advocacy and support topics.
MPN Advocates Network was founded by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organisations and providing a platform for joint activity.
The objective of the organisation is to enhance MPN patient care by collaboratively:
MPN Advocates Network operates purely for the benefit of MPN patients and acts independently of any other organisation or company. MPN Advocates Network aims to be supported by a broad base of sponsorship & funding.
We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group
“Together we have a stronger voice!“
The current members of the organization are listed below.
Do you want to become a member? Please email firstname.lastname@example.org
Please fill out the Membership application form and email it to email@example.com. Your application will be reviewed by our membership committee and your organization will be contacted when it is approved.
MPN Advocates Network
c/o Münzgraben 6, P.O.B. 453,
CH-3000 Bern 7,