MPN Horizons 2019
The 2019 global conference for MPN Patient Advocates was held from October 25th to October 27th in Lisbon, Portugal.
Delegates attended from Armenia, Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Chile, Croatia, Czech Republic, Denmark, Finland, France, Germany, Hungary, India, Ireland, Israel, Italy, Japan, Korea, Macedonia, Morocco, the Netherlands, Norway, the Philippines, Serbia, Slovakia, Slovenia, Sweden, Switzerland, Thailand, the UK, and the USA.
The event consisted of over 20 talks, covering updates on MPN Research, the Psycho-Social Impact of an MPN Diagnosis on patients and caregivers, How to be an Effective MPN Advocate, Pipeline of treatment options for MPNs and a variety of advocacy and support topics.
Videos and slides from the presentations are available here.
Goal
MPN Advocates Network was founded by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organisations and providing a platform for joint activity.
The objective of the organisation is to enhance MPN patient care by collaboratively:
- Acting as an international collective representative of MPN patient groups, interacting with healthcare funding, treatment approval, and treatment research organisations
- Sharing best practice of support and advocacy activities between all patient groups
- Sharing available information on all current treatments, technologies and research results
- Encouraging cooperation between advocates, researchers, clinicians, and health care organizations
MPN Advocates Network operates purely for the benefit of MPN patients and acts independently of any other organisation or company. MPN Advocates Network aims to be supported by a broad base of sponsorship & funding.
Members
We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group
“Together we have a stronger voice!“
The current members of the organization are listed below.
Do you want to become a member? Please email mpnadvocatesnetwork@gmail.com
Please fill out the Membership application form and email it to mpnadvocatesnetwork@gmail.com. Your application will be reviewed by our membership committee and your organization will be contacted when it is approved.
Click Here for MPN Advocates Network Membership Registration Form
Contact
MPN Advocates Network is part of the Leukemia Patient Advocates Foundation, based in Bern, Switzerland.
MPN Advocates Network
c/o Münzgraben 6, P.O.B. 453,
CH-3000 Bern 7,
Switzerland
mpnadvocatesnetwork@gmail.com