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Register now for the 2020 MPN Horizon
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DAY 2 of MPN Horizons coming January 2021
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Our Goal
The objective of the organisation is to enhance MPN patient care
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MPN news from ASH 2020

Human Medicines Highlights Newsletter

Part One of MPN Horizons 2020 a success; Day Two on 24 January 2021!

We were honored to have so many members attend our first virtual Horizons! Videos and slides from the presentations are available here.

Thank you to our speakers Dr. Ruben Mesa, Steffen Koschmieder & Prof Alessandro Vannucchi.

As a reminder the second part of the program takes place January 24th. If you are already registered, we will forward information about the agenda and logistics once they are available.

Goal

MPN Advocates Network was founded by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organisations and providing a platform for joint activity.

The objective of the organisation is to enhance MPN patient care by collaboratively:

  • Acting as an international collective representative of MPN patient groups, interacting with healthcare funding, treatment approval, and treatment research organisations
  • Sharing best practice of support and advocacy activities between all patient groups
  • Sharing available information on all current treatments, technologies and research results
  • Encouraging cooperation between advocates, researchers, clinicians, and health care organizations

MPN Advocates Network operates purely for the benefit of MPN patients and acts independently of any other organisation or company. MPN Advocates Network aims to be supported by a broad base of sponsorship & funding.

Members


We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group

Together we have a stronger voice!

The current members of the organization are listed below.

Do you want to become a member? Please email info@mpn-advocates.net

Please fill out the Membership application form and email it to info@mpn-advocates.net. Your application will be reviewed by our membership committee and you will be contacted when it’s approved.

 


Click Here for MPN Advocates Network Membership Registration Form


 

MPN member organizations

WESTERN EUROPE

  1. Austria – MPN Austria
  2. Belgium – MPN Belgium
  3. Denmark – Danish MPN Patient Organization
  4. Finland – Association on Cancer Patients in Finland
  5. France – ALTE SMP
  6. Germany – MPN Netzwerk E.V.
  7. Italy – AIPAMM
  8. Israel – Flute of Light
  9. The Netherlands – MPN Stichting Netherlands
  10. Norway – The Norwegian Bloodcancer Association-Blodkreftforeningen
  11. Spain – AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia
  12. Sweden – Swedish Blood Cancer Organization
  13. Switzerland – MPN Patient Support Association Switzerland
  14. United Kingdom – MPN Voice UK
  15. United Kingdom – Leukemia Care

ASIA AND PACIFIC

  1. Australia – MPN Alliance Australia
  2. Australia – Rubi Red
  3. India – Friends of Max
  4. Japan – MPN-JAPAN
  5. Korea – KBDCA (Korea Blood Disease & Cancer Association)
  6. Thailand – MPN Thailand Advocacy group

NORTH AMERICA

  1. Canada – Canadian MPN Network
  2. USA – MPN Cancer Connection
  3. USA – The Leukemia and Lymphoma Society
  4. USA – MPN Research Foundation

LATIN AMERICA

  1. Brazil – ABRALE-Brazilian Lymphoma and Leukemia Society
  2. Chile – The Max Foundation Chile
  3. Chile – Corporación Nacional Maxi-Vida Chile
  4. Costa Rica – AGALEMO Amalia & Glenn Dewey Association for Leukemia,Myeloma and Other blood cancer patients

MIDDLE EAST AND AFRICA

  1. Morocco A.M.A.L Organization

CENTRAL AND EASTERN EUROPE & WEST ASIA

  1. Armenia – MPN Armenia
  2. Azerbeijan – Fighting Leukemia
  3. Croatia – Croatian Leukemia and Lymphoma Society (HULL)  
  4. Czech Republic – Diagnoza leukemie
  5. Hungary – MOHA-Fondation for Hungarian Oncohematological Patients
  6. Macedonia – HEMA
  7. Serbia – LIPA
  8. Slovakia – Association of patients with hematological malignancies
  9. Slovenia – Slovenian lymphoma and leukemia patient association

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Contact

MPN Advocates Network is part of the Leukemia Patient Advocates Foundation, based in Bern, Switzerland.

MPN Advocates Network
c/o Münzgraben 6, P.O.B. 453,
CH-3000 Bern 7,
Switzerland

info@mpn-advocates.net