MPN Horizons 2020
Video and Presentations NOW AVAILABLE
Review of MPN News from ASH 2020
with Prof Claire Harrison
Our Goal
The objective of the organisation is to enhance MPN patient care
Banner Shadow

MPN news from ASH 2020

Human Medicines Highlights Newsletter

Video is now available of our recent MPN AN webinar

“Review of the MPN news from the American Society of Hematology (ASH) annual meeting”
with Prof Dr Claire Harrison from Guy’s & St Thomas’ Hospital.

The webinar took place on 18 February 2021 and it is the first in a set of members-only meetings for MPN patient advocates to equip you with all the recent information you need to pass on to your respective organisation.

Many thanks also to our own Kapila Viges (MPNRF, United States) and Ken Young (MPN Alliance Australia) for co-moderating this informative session!


MPN Advocates Network was founded by representatives from several MPN patient support groups as a way of creating and maintaining collaboration between these organisations and providing a platform for joint activity.

The objective of the organisation is to enhance MPN patient care by collaboratively:

  • Acting as an international collective representative of MPN patient groups, interacting with healthcare funding, treatment approval, and treatment research organisations
  • Sharing best practice of support and advocacy activities between all patient groups
  • Sharing available information on all current treatments, technologies and research results
  • Encouraging cooperation between advocates, researchers, clinicians, and health care organizations

MPN Advocates Network operates purely for the benefit of MPN patients and acts independently of any other organisation or company. MPN Advocates Network aims to be supported by a broad base of sponsorship & funding.


We welcome all organizations that represent MPN patients, whether as part of a larger organization for blood disorders or as an MPN-specific group

Together we have a stronger voice!

The current members of the organization are listed below.

Do you want to become a member? Please email

Please fill out the Membership application form and email it to Your application will be reviewed by our membership committee and you will be contacted when it’s approved.


Click Here for MPN Advocates Network Membership Registration Form


MPN member organizations


  1. Austria – MPN Austria
  2. Belgium – MPN Belgium
  3. Denmark – Danish MPN Patient Organization
  4. Finland – Association on Cancer Patients in Finland
  5. France – ALTE SMP
  6. Germany – MPN Netzwerk E.V.
  7. Italy – AIPAMM
  8. Israel – Flute of Light
  9. The Netherlands – MPN Stichting Netherlands
  10. Norway – The Norwegian Bloodcancer Association-Blodkreftforeningen
  11. Spain – AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia
  12. Sweden – Swedish Blood Cancer Organization
  13. Switzerland – MPN Patient Support Association Switzerland
  14. United Kingdom – MPN Voice UK
  15. United Kingdom – Leukemia Care


  1. Australia – MPN Alliance Australia
  2. Australia – Rubi Red
  3. India – Friends of Max
  4. Japan – MPN-JAPAN
  5. Korea – KBDCA (Korea Blood Disease & Cancer Association)
  6. Thailand – MPN Thailand Advocacy group


  1. Canada – Canadian MPN Network
  2. USA – MPN Cancer Connection
  3. USA – The Leukemia and Lymphoma Society
  4. USA – MPN Research Foundation


  1. Brazil – ABRALE-Brazilian Lymphoma and Leukemia Society
  2. Chile – The Max Foundation Chile
  3. Chile – Corporación Nacional Maxi-Vida Chile
  4. Costa Rica – AGALEMO Amalia & Glenn Dewey Association for Leukemia,Myeloma and Other blood cancer patients


  1. Morocco A.M.A.L Organization


  1. Armenia – MPN Armenia
  2. Azerbeijan – Fighting Leukemia
  3. Croatia – Croatian Leukemia and Lymphoma Society (HULL)  
  4. Czech Republic – Diagnoza leukemie
  5. Hungary – MOHA-Fondation for Hungarian Oncohematological Patients
  6. Macedonia – HEMA
  7. Serbia – LIPA
  8. Slovakia – Association of patients with hematological malignancies
  9. Slovenia – Slovenian lymphoma and leukemia patient association

[modula id=”2497″]



MPN Advocates Network is part of the Leukemia Patient Advocates Foundation, based in Bern, Switzerland.

MPN Advocates Network
c/o Münzgraben 6, P.O.B. 453,
CH-3000 Bern 7,