About us

Constitution and Legal Status

The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain and the UK.

The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.

The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.

The constitution is available on request. Please email mpnadvocatesnetwork@gmail.com


The Steering Committee consists of MPN Patient Advocates from across the world.


Chairperson: Jon Mathias, London UK

Vice Chairperson: Peter Loffelhardt, Barcelona/Switzerland

Secretary/Treasurer: Cheryl Petruk, Canada

Committee Members:

William Crowley, USA

Werner Zinkand, Germany

Robi  Zelig, Israel

Felice Bombaci, Italy

Giora Scharf, LePaf Representative, Israel