Constitution and Legal Status
The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain, and the UK.
The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.
The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.
The constitution is available on request. Please email info@mpn-advocates.net
The Steering Committee consists of MPN Patient Advocates from across the world.
Steering Committee
Chairperson |
Treasurer |
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Michelle Woehrle MPNRF, USA |
Werner Zinkand MPN-Netzwerk Germany |
Committee Members
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Felice Bombaci Gruppo AIL Pazienti LMC, Italy |
Mirjana Babamova HEMA, Macedonia |
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Jon Mathias MPN Voice, UK |
Cheryl Petruk MPN Canadian MPN Patients Network, Canada |
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Param Puthen Friends of Max, India |
Giora Sharf LePaf Representative and Israeli Flute of Light Patients Organization, Israel |
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Lyat Granati Espinosa Max Foundation, Chile |
Ken Young MPN Alliance, Australia |