Constitution and Legal Status:

The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain and the UK.

The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.

The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.

The constitution is available on request. Please emailĀ

The Steering Committee consists of MPN Patient Advocates from across the world.

Chairperson: Jon Mathias, London UK

Vice Chairperson: Peter Loffelhardt, Barcelona/Switzerland

Secretary/Treasurer: Cheryl Petruk, Canada

Committee Members:

Felice Bombaci, Italy

Giora Sharf, LePaf Representative, Israel

Lexi Moore, USA

Mirjana Babamova, Macedonia

Robi Zelig, Israel

Werner Zinkand, Germany