Constitution and Legal Status:
The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain and the UK.
The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.
The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.
The constitution is available on request. Please email mpnadvocatesnetwork@gmail.com
The Steering Committee consists of MPN Patient Advocates from across the world.
Chairperson: Jon Mathias, London UK
Vice Chairperson: Peter Loffelhardt, Barcelona/Switzerland
Secretary/Treasurer: Cheryl Petruk, Canada
Committee Members:
Felice Bombaci, Italy
Giora Sharf, LePaf Representative, Israel
Lexi Moore, USA
Mirjana Babamova, Macedonia
Robi Zelig, Israel
Werner Zinkand, Germany