Constitution and Legal Status
The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain, and the UK.
The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.
The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.
The constitution is available on request. Please email info@mpn-advocates.net
The Steering Committee consists of MPN Patient Advocates from across the world.
Steering Committee
Chairperson |
Treasurer |
 |
 |
Werner Zinkand MPN-Netzwerk Germany |
Mirjana Babamova HEMA, Macedonia |
Committee Members
 |
 |
Felice Bombaci Gruppo AIL Pazienti LMC, Italy |
Lyat Granati Espinosa Max Foundation, Chile |
 |
 |
Jon Mathias MPN Voice, UK |
Giora Sharf LePaf Representative and Israeli Flute of Light Patients Organization, Israel |
 |
 |
Param Puthen Friends of Max, India |
Kapila Viges MPN Research Foundation, USA |
|
|
| Ken Young MPN Alliance, Australia |