MPN Advocates Network (MPN AN) operates for the benefit of MPN patients and acts independently of any other organization or company. The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patient Advocates Foundation, registered as a non-profit organisation in Switzerland. MPN AN has it’s own scientific advisory board.
Our Mission
The mission of the MPN Advocates Network is to enhance the ability of global patient advocacy organizations to improve:
- Patient care
- Quality of life
- Patient empowerment
for all patients who have been diagnosed with myeloproliferative neoplasms (MPN) and their caregivers.
Our Vision
Our vision, quite simply, is a world without MPNs.
Funding
MPN AN receives support from a broad base of sponsors and diversified funding sources. Our funding for the activities comes from the variety of sources including pharmaceutical companies and philanthropy.
– Steering Committee –
Chairperson |
Treasurer |
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Werner Zinkand MPN-Netzwerk Germany |
Param Puthen Friends of Max, India |
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Felice Bombaci Gruppo AIL Pazienti LMC, Italy |
Lyat Granati Espinosa Max Foundation, Chile |
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Jon Mathias MPN Voice, UK |
Giora Sharf LePaf Representative and Israeli Flute of Light Patients Organization, Israel |
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Ken Young MPN Alliance, Australia |
Kapila Viges MPN Research Foundation, USA |
Dražen Vincek
Croatian Leukemia and Lymphoma Society (HULL), Croatia
– Management Team –
Marija Stefkova
Macedonia
email: doneva@mpn-advocates.net