Constitution and Legal Status

The network was originally founded in 2013 by representatives of MPN patient groups from the Netherlands, Spain, and the UK.

The objective is to create a global network of MPN patient groups and new members are always welcome – please see the members page.

The organisation is constituted as an independent steering committee within a parent organisation, the Leukaemia Patent Advocates Foundation, registered as a non-profit organisation in Switzerland.

The constitution is available on request. Please email info@mpn-advocates.net

The Steering Committee consists of MPN Patient Advocates from across the world.

 

Steering Committee

 

Chairperson
Werner Zinkand MPN-Netzwerk Germany

 

Committee Members

 

Felice Bombaci Gruppo AIL Pazienti LMC, Italy	Lyat Granati Espinosa Max Foundation, Chile

 

Jon Mathias MPN Voice, UK	Giora Sharf LePaf Representative and Israeli Flute of Light Patients Organization, Israel

 

Param Puthen Friends of Max, India	Kapila Viges MPN Research Foundation, USA

 

Ken Young MPN Alliance, Australia