MPN Horizons 2018

The 2018 global conference for MPN Patient Advocates was held from August 31st to September 2nd in Prague, the Czech Republic

Delegates attended from Armenia, Australia, Austria, Belgium, Brazil, Bulgaria, Canada, Chile, Croatia, Czech Republic, Denmark, Finland, France, Germany, Hungary, India, Ireland, Israel, Italy, Japan, Korea, Macedonia, Morocco, the Netherlands, Norway, the Philippines, Serbia, Slovakia, Slovenia, Sweden, Switzerland, Thailand, the UK and the USA.

The event consisted of over 20 talks, covering updates on MPN Research, current and emerging therapies, symptom management and a variety of advocacy and support topics.

The conference was also a unique opportunity for MPN Patient Representatives and Advocates to meet, discuss the issues facing MPN patients around the world and to share best practices from local groups.

Below you will find the videos and slides from the presentations at 2018 MPN Horizons.

Videos and slides from the presentations are available here.

Video Gallery

1 Joint opening MPN and CLL Horizons 2018 Prague

Joint opening session of MPN and CLL Horizon's Conference 2018 Prague Czech Republic

2 NCCN Guidelines & further updates Dr Martin Ellis

MPN NCCN Guidelines and updates - Dr. Martin Ellis

3 MPN Advocates Project Presentation

MPN Advocates Project Presentation - Current work in Progress

4 Interferon Dr Martin Ellis

Interferon Treatment for MPN patients presented by Dr. Martin Ellis at MPN Horizons 2018

5 New therapies incl Crisper, Immunotherapy, CAR T cell Dr Ruben Mesa

New Treatment Options for MPN Patients by Dr. Ruben Mesa

6 Overview of current and planned clinical trials Dr Claire Harrison

Overview of Current and planned clinical trials for MPN Patients by Dr. Claire Harrison

7 Challenges of Managing Patients & Families at Diagnosis and Through Watch & Wait Doctor Perspec

Challenges of managing patients and families at diagnosis of an mpn blood cancer with watch and wait

8 Challenges of Managing Patients & Families at Diagnosis and Through Watch & Wait Doctor Perspec

Managing patients and families at diagnosis and through watch and wait - Dr. Brian Koffman

9 Challenges that Patients Have with Watch & Wait – Patient Perspective Robi Zelig

Patient Perspective on Challenges that Patients have on watch and wait - Robi Zelig

10 Challenges that Patients Have with Watch & Wait – Patient Perspective Pierre Aumont

Challenges that Patients Have with Watch & Wait – Patient Perspective Pierre Aumont

11 Q&A

General question and answer at MPN Horizons 2018

1 Information sharing with patients and relatives along 3 channels Niels Jensen

Information sharing with patients and relatives along 3 channels Niels Jensen

2 Establishing the Canadian MPN Research Foundation Cheryl Petruk

Establishing the Canadian MPN Research Foundation Cheryl Petruk

3 Watch & Wait Tracker, Elizabeth Lye

Watch & Wait Tracker, Elizabeth Lye

4 PV Reporter, David Bruce Wallace

PV Reporter, David Bruce Wallace

5 Patient support group and charity golf tournament, Elena Georgieva

Patient support group and charity golf tournament, Elena Georgieva

6 How to run an Internet forum for MPN Patients, Pros and Cons, Rainer Kuhlmann & Werner Zinkand

How to run an Internet forum for MPN Patients, Pros and Cons, Rainer Kuhlmann & Werner Zinkand

7 Active Advocacy – Power or Advocacy HIV example CAB’s Tamás Bereczky

Active Advocacy – Power or Advocacy HIV example CAB’s Tamás Bereczky

8 How patients can get involved in research Lydia Makaroff

How patients can get involved in research Lydia Makaroff

9 Using advocacy to achieve goals Elizabeth Lye & Deborah Baker

Using advocacy to achieve goals Elizabeth Lye & Deborah Baker

10 Panel discussion Research Process with Industry & Doctors

Panel discussion Research Process with Industry & Doctors

11 Managing Multiple Priorities Lorna Warwick & Giora Sharf

Managing Multiple Priorities Lorna Warwick & Giora Sharf

12 Patient Engagement Felice Bombaci & Werner Zinkland

Patient Engagement Felice Bombaci & Werner Zinkland

13 Awareness Nick York & Bethany Torr

Awareness Nick York & Bethany Torr

14 Social Media Michael Rynne & Cheryl Petruk

Social Media Michael Rynne & Cheryl Petruk

1 Role of the clinic Nurse Specialist Yvonne Francis

Role of the clinic Nurse Specialist Yvonne Francis

2 Psycho social aspects Dr Luka Bailo

Psycho social aspects Dr Luka Bailo

3 Landmark study Dr Ruben Mesa

Landmark study Dr Ruben Mesa

4 Challenge of access to therapies Dr Andrija Bogdanović

Challenge of access to therapies Dr Andrija Bogdanović

5 Challenge of access to therapies Dr Mirjana Babamova & Maja Kocic

Challenge of access to therapies Dr Mirjana Babamova & Maja Kocic

6 How advocacy can influence access Teodora Kolarova

How advocacy can influence access Teodora Kolarova

7 Presenting evidence to prove the case Jon Mathias & Michelle Woerhle

Presenting evidence to prove the case Jon Mathias & Michelle Woerhle

8 Closing, Best Poster Award and Next Steps

Closing, Best Poster Award and Next Steps