Welcome Message
MPN Mini Horizons 2020/2021
DAY 2: 24 January 2021
Starting at 14:00 time zone of Central European Time (CET)
AGENDA
14:00-14:10
Opening:
- Welcome & Introduction (format of meeting and housekeeping)
- Comments from the last session
Speakers: Cheryl Petruk and Werner Zinkand
14:10-15:40
Medical session #2: Living well with an MPNs
Chairs: Giora Sharf and Ken Young
- MPN and COVID 19- What have we learned so far
Prof. Tiziano Barbui, Bergamo, Italy
- Complimentary Therapeutic Strategies
Dr. Ruben Mesa, UT San Antonio, USA
- Nutrition and MPN
Angela Fleischman, University of California, USA
Q & A
15:40-16:00
Break
16:00-17:30
Advocacy #2:– Generating Real World Evidence in Your Country and its use
Chairs: Mirjana Babamova and Param Puthen
- How can a patient organization generate Real World Evidence and use it?
Zack Pemberton Whiteley – Leukemia Care UK
- Collecting data for the Patient Focused Drug Development (PFDD)
Michelle Woehrle – MPN RF, USA
- Clinical and economic impact of Hydrea Intolerance in PV patients in Israel, a retrospective RWE study
Giora Sharf – Flute of Light Israel
- Surviving and thriving during the pandemic
Bahija Gouimi – AMAL Association Morocco
- Landmark results for MPN
Jon Mathias, MPN Voice, UK
Q & A
17:30-17:45
Concluding comments
- Discussion of plan for future “The way forward” – Mirjana Babamova
- How PAGs can stay involved and in communication – Michelle Woehrle
Video gallery
Photo gallery
Speakers
Who is Who
Sponsors
Thank you to the sponsors of MPN AN!
