Welcome Message


 

MPN Mini Horizons 2020/2021

DAY 2:  24 January 2021

Starting at 14:00 time zone of Central European Time (CET)

AGENDA

14:00-14:10
Opening:

  • Welcome & Introduction (format of meeting and housekeeping)
  • Comments from the last session
    Speakers: Cheryl Petruk and Werner Zinkand

14:10-15:40
Medical session #2: Living well with an MPNs
Chairs: Giora Sharf and Ken Young

  • MPN and COVID 19- What have we learned so far
    Prof. Tiziano Barbui, Bergamo, Italy
  • Complimentary Therapeutic Strategies
    Dr. Ruben Mesa, UT San Antonio, USA
  • Nutrition and MPN
    Angela Fleischman, University of California, USA 

         Q & A

15:40-16:00
Break

16:00-17:30
Advocacy #2:– Generating Real World Evidence in Your Country and its use
Chairs: Mirjana Babamova and Param Puthen

  • How can a patient organization generate Real World Evidence and use it?
    Zack Pemberton Whiteley – Leukemia Care UK
  • Collecting data for the Patient Focused Drug Development (PFDD)
    Michelle Woehrle – MPN RF, USA
  • Clinical and economic impact of Hydrea Intolerance in PV patients in Israel, a retrospective RWE study
    Giora Sharf – Flute of Light Israel
  • Surviving and thriving during the pandemic
    Bahija Gouimi – AMAL Association Morocco
  • Landmark results for MPN
    Jon Mathias, MPN Voice, UK

Q & A

17:30-17:45
Concluding comments

  • Discussion of plan for future “The way forward” – Mirjana Babamova
  • How PAGs can stay involved and in communication – Michelle Woehrle

 

 


 

Speakers

Prof. Tiziano Barbui
Italy
Bio
Dr. Angela Fleischman
USA
Bio
Dr. Ruben Mesa
USA
Bio

Who is Who

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Sponsors

Thank you to the sponsors of MPN AN!